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survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS 

"The Chronic Illness Survey Adventure (Symptom Cluster Characterization in Complex Chronic Disease) is a survey-based study to probe more deeply into ME/CFS, long COVID, POTS [postural orthostatic tachycardia syndrome], hEDS [hypermobile Ehlers-Danlos syndrome], and MCAS [mast cell activation syndrome]."

18+ only, open worldwide.

meaction.net/epi/faq/

thecanary.co/feature/2021/05/3

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re: survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS 

@porsupah hm, fibromyalgia seems to be missing from their list of usual suspects. Accidental oversight, or do they already have too many fibro folks?

re: survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS 

@porsupah ah, they do specifically call out fibromyalgia as another thing they want to study but they don't have the funding for it just yet. Guess I'll have to wait.

re: survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS 

@fluffy Could be worth checking with them - perhaps it's early enough for it to be added.

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